A few weeks ago I was talking with some friends about how much progress Nick has been making. He is developmentally delayed, so he does things at his own pace.
“You can’t help but root for him,” one friend said.
“Everyone is rooting for Nick,” another said.
Everywhere we go people root for Nick. Family, friends, teachers, even strangers are charmed by the crookedness of his smile and the sparkle in his eyes. His sweetness is apparent within moments of meeting him.
Yesterday our little world tilted off its axis a bit. Yesterday we found out that Nick has likely been having absence seizures for quite a while now. You can google if you like, I’m not going to link because Nick has his own story.
Absence seizures are moments when the brain switches off. Nick’s seem to last from 1/10th of a second up to 3 seconds. He sometimes has as many as 10 in an hour, but also passes hours without any.
If you have ever spent time with Nick, you have likely witnessed a seizure. I shudder to think how many I witnessed before I knew what they were. He just appears to be staring at nothing, spacing out.
We have started the process of tests and more tests and likely won’t know anything for another month or so. He will probably begin medication at that time. We are also looking into some diet changes that may help keep them at bay. I will be reading and learning and educating myself.
As a mom, all I ask is that our friends treat him the way they always have and keep rooting for him.
No one will be rooting for him more than I am.